The victim, the hero(ine): Snow White and Dobby the house elf…

Snow-White-Wallpaper-snow-white-and-the-seven-dwarfs-6475323-1024-768

The house is quiet. I have a hot coffee… and before I walk the dog, I thought I would empty my head. A little slice of my heaven….the quiet side, because I usually love the noise and chaos!

After 7 hours on a hard plastic chair and 11 hours with no food with only sneaky hidden sip of water when Willy wasn’t watching, we arrived home last night at about 7.30pm. My big man was home… a big bowl of pasta waiting for a very hungry and now very happy, jolly Willy. And a comment to me that I should get dinner on..

And here is where I watch a little scene play out in my head. I watch my thoughts… After two years of immersing myself in self development and life coaching with my wonderful coach, Karen, I see the Victim battle with the Heroine.

In my mind they have names, faces… it’s easier to watch then. My Heroine is Snow White… graceful, kind, loving, generous, abundant always smiling and singing a happy tune! Fa La La!!! My victim, my saboteur, is Dobby the house elf – he can’t help it but he is negative, selfish, fearful, skipping and hopping and dancing around nervously…

Dobby shouts back, hopping and waving his little fist.. ‘WHAT?! Are you serious? Me cook? Now? I can barely stand? I had a protein shake at 7am and nothing since, emotionally drained from worry and relief, still full of cold and you want me to cook?!’…

But Snow White is there… calm and floaty… ‘but look at him… he is tired.. he has tired eyes from driving 200 miles this evening and 80 this morning, he has a red nose so clearly has a cold, he has worked so hard this week.. and he has made the pasta… And look! Don’t you remember you took a stew out of the freezer this morning for tonight anyway? All you have to do is tip it in a pan and reheat it?’

Dobby still isn’t quite finished…little fists raised, gallopping around the kitchen… ‘but no one has looked after you this week? Don’t you want some TLC? Weren’t you looking forward to one of his big bear hugs, enveloping you in warmth and certainty? Someone to make you a hot drink and give you a hug and say everything will be ok? Can’t he see you need that? Go on – give him a peace of your mind!’

Thank God for Snow White… ‘If you cook for him, give him your soft tissues, he will hug you…. Look he is suffering just as much as you – can’t you hear him grunting, snorting, groaning? He needs a hug too and looking after… Look after him and he will look after you.’  Fa la la!

….

You are probably reading this and thinking, My God – she needs to join her mother in the Mental Hospital!  Is she seriously visualising Snow White and Dobby prancing around her kitchen?

But having read ‘The Power of Now’, ‘The Chimp Paradox’…I am beginning to understand so much more about the mind… How you can change reactions in to responses…   One of my favourite quotes, I can’t remember who said it as there as so many variations from so many key authors, speakers… ‘Where focus goes, energy flows and results show’. Us British are so good at focus on the negative, playing the underdog… when really we should focus on what we want, the positives we have.

Years ago I used to let Dobby rule my reactions and last night would have ended up in arguments and no supper, tears and frustration.

Just call me Snow White.

Tale of two hospitals….

Does anyone have a week in which absolutely nothing goes as planned? Nothing? (Well my mentoring did – so that’s a white lie!)

I was so looking forward to this week – lots of meetings, coffee dates, gym, spin and appointments, dinner with friends… But I spent 3 days just managing to get the boys to school and sleeping for my usually productive hours. Illness or emotion getting the better of me…
And today – the first day I feel less achy, have more gumption, managed to get up for my Pilates and even had enough energy to take the dog for walk… I get a call from school saying that Willy is unusually unhappy with severe stomach pains. He hasn’t had gluten and he hasn’t been sick. But he is clearly distressed and doubled in pain…. So we sit in the doctors, with my mind wandering from trapped wind to appendicitis.. 
The doctor is stumped… Willy is clearly in pain but can’t explain it. He says it could go either way – stop suddenly or deteriorate rapidly. Perplexed… Considering his options… And Willy suddenly deteriorates, writhing in pain… Little face red and crying.. So unlike my happy little mouse. 
Decision made… He starts to ring the hospital… I tell him firmly under no circumstances will I go back to the hospital who took 3 months to misdiagnose Willy with reflux and then rush him to have open stomach surgery. He puts the phone down and asks me where I would go! It may have longer waiting times and I may not get a nice cup of tea and a carpet but at least I will have faith in the diagnosis.
So I am dressed in my dog walking kit, no make up, hair a mess… How long am I going to be? Do I nip home for snacks, a shower, change and look respectable? One look at willy and I know that is unreasonable… Leeds will have to take me as I am…. 
That was at 11 am… 
It is now 15.43…. We are still here.
Willy was so brave – wards are scary in Leeds. No position was comfy and he did his flappy bird impression, creased up little face pleading at me…. Heart wrenching as a parent and you would do anything to take the pain. I keep calm and pray, visualise a miraculous recovery, a hearty trump.. Anything but the thought of surgery on my little man… It made me weak at the knees 5 years ago and I know it will have the same effect even now.
Willy calms and lies in the one position he finds relief. And 30 minutes later he looks up and asks to go home…. He feels better. I didn’t hear a trump. 
Is this a miracle?  
He has been playing nicely and I have asked to leave but we can’t go! The surgeon has to feel his tummy and discharge us… Even though the bugs going round could be the answer, it could be appendicitis or grumbling appendix… We have to wait.
Willy and I don’t do well without food. Breakfast at 7 feels a long time ago.
I commend the NHS… It is Friday. So many poorly poorly children, babies. The place is over spilling.. But we have no idea where we are on a list – others arriving after us are seen first… Others seemingly worse are also still here. Communication is seriously lacking… The nurses can’t answer my questions, as lovely and kind as they are.
There are parallels with the NHS mental hospital behind whose iron bars my mum is hidden… My dad is still unable to find answers about the plans for my mum, how long will she be observed, when will they try new drugs, what drugs, is the plan for her to leave … When can we ring, who should we speak to, who is looking after her, what has she eaten… When did she last have a bath? No one can tell us…. 
I am incredibly grateful for the NHS and the wonderful service they provide and I know how hard everyone works, having great friends as consultants, consultant surgeons, anaesthetists, doctors and nurses, OT’s… Even overworked.. 
I would be really, overly grateful if someone could just come and tell me if Willy can eat something, drink something, if we can go home… 
  

Still Alice….

Still alice

So I watched ‘Still Alice’ last night. Something I have been putting off for ages as I thought it would make me melt down, sob too much. So many had warned me off it…

It was a lovely portrayal of a young, brilliant professor who has early onset of Alzheimer’s at 50. It shows the slow, almost minor forgetfulness of names, words, places that could be just old age… it shows how the progression of Alzheimer’s speeds up, to forgetting people, well known places to incontinence and inability to recognize any one, walk or even speak in anything other than grunts. It shows the sadness of the immediate family members as they see the degradation of a beautiful mind within a still outwardly beautiful person.

It was a lovely portrayal. Isn’t that sad…. There, there Alzheimer’s… That’s not so bad, I could handle that…

It didn’t make me cry, sob like I hoped it would. I found it rather a dumbed down, watered down, rather beautiful betrayal of an incredibly cruel disease. I found it more frustrating rather than emotive.

Where are the furious tantrums, the slamming of doors, the throwing of pots, the lunatic shouting? The long silences while locked in a bathroom or bedroom? Where are the hours of searching for a missing loved one and finding them miles and miles away at an old friend’s house or side of a motorway? Where are the scenes of complete lack of recognition for a daughter, a husband? Where are the scenes of self preservation, knife attacks out of gut instinct that something is wrong… so incredibly wrong… but just not sure what?

I felt robbed when it ended. I wanted to know what happened next? How did their family deal with putting their beautiful mother in care, in a home? How did they deal with the grief? The guilt? Were they told they couldn’t visit? Did they ring daily to find out how she was? How did they cope with the frustration of not knowing anything? How did they knock down the brick wall that is the NHS mental care home system? Did they go and sit outside the very important Doctor’s door until he had time to respond to a father, husband’s desperate need for information?

My Mum is lost inside her head.

We are lost in the world outside it without her.

It’s 11.38 and the other half of my sandwich beckons… my head still fuzzy with cold, blocked ears making me dizzy but there is still so much to do!

I mustn’t forget to walk the dog.